Neurocrine Biosciences Leverages PicnicHealth to Reveal Critical Care Gaps for Patients with Rare Genetic Condition

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[{"type":"text","content":"Technology-enabled research approach and AI-powered analysis identify unmet needs in patients with congenital adrenal hyperplasia\nSAN FRANCISCO, July 15, 2025 /PRNewswire/ -- PicnicHealth, a health technology company dedicated to advancing the next generation of non-interventional research, today announced its research collaboration with Neurocrine Biosciences, Inc. (Nasdaq: NBIX), the CAHtalog® Registry, identified an unmet need in patients with classic congenital adrenal hyperplasia (CAH). Using PicnicHealth's AI-powered technology to curate medical records and enable remote participation, the study revealed that CAH patients require lifelong, continuous adjustments to glucocorticoid dosing—the current standard treatment—to maintain condition control.\n\n \n \n \n \n \n \n\n \nCAHtalog® was founded in 2021 by PicnicHealth and Neurocrine, in collaboration with the CARES Foundation, to establish a U.S.-based registry that helps patients with CAH by advancing patient-centered research and enhancing the scientific community's foundational knowledge of the condition. CAH is a rare genetic condition that affects adrenal gland function, disrupting hormone production and impacting growth and development. Conducting longitudinal studies on rare diseases is challenging for researchers using site-based models due to the wide geographic spread of patients. Tech-enabled research models improve access and participation by removing the burden of in-person visits over extended periods.\n\"This study shows how researchers can minimize patient burden while still gathering valuable, long-term insights to answer their research questions,\" says Dan Drozd, MD, MSc, chief medical officer at PicnicHealth. \"New technologies, including AI, make it possible to integrate data from across patients' medical records, expanding knowledge on this condition and providing direct benefits to participating patients.\"\nPicnicHealth conducts non-interventional research by collecting medical records from anywhere patients receive care and enabling patients to complete research activities through an intuitive app. The app also features an AI assistant that empowers patients to navigate their medical records with ease. This novel approach to registries helps life sciences companies answer their research questions more efficiently while fostering long-term patient ...

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