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Jazz Pharmaceuticals Launches Initiative to Help Educate People Living with Rare Form of Leukemia
Program aims to empower patients and their loved ones living with secondary acute myeloid leukemia or myelodysplastic syndromes through powerful tools and
About this update from Jazz Pharmaceuticals Plc
[{"type":"text","content":"Program aims to empower patients and their loved ones living with secondary acute myeloid leukemia or myelodysplastic syndromes through powerful tools and real stories\n\n\nDUBLIN, Sept. 17, 2020 /PRNewswire/ -- Jazz Pharmaceuticals plc (Nasdaq: JAZZ) today announced the launch of Find the Right Fit (FindTheRightFit-sAML.com), a U.S. patient education program developed in consultation with the Myelodysplastic Syndromes (MDS) Foundation, Inc. and the Cancer Support Community focused on empowering people affected by secondary acute myeloid leukemia (sAML) and MDS.\nWithin the hematology oncology community, certain patient groups face especially difficult odds. In particular, patients newly diagnosed with sAML and related blood disorders have few resources focused on disease education and managing daily life that are dedicated to this community. As a subtype of AML, which has the lowest survival rate of all leukemias1, sAML has a particularly poor prognosis.2,3\n\"During Blood Cancer Awareness Month, we reflect on the unwavering strength of patients, caregivers, families and healthcare providers battling or impacted by blood cancer,\" said Kim Sablich, executive vice president and general manager of North America at Jazz Pharmaceuticals. \"Find the Right Fit was created with the understanding that an sAML diagnosis can be overwhelming, but that education can help inform optimal treatment plans that work best for each individual patient.\"\nFind the Right Fit—Nagivating sAML offers patients and their caregivers a powerful collection of tools, including articles, videos, and patient stories, intended to educate on the science behind sAML, provide information on which subtypes patients should be tested for, and offer resources regarding treatment options and coping strategies. The program also shares the stories of patients, which are featured to help those impacted by sAML relate to the various experiences and perspectives that exist within the community. \n\"In addition to the support available through the Cancer Support Community and the Myelodysplastic Syndrome Foundation, Inc., we are pleased that Find the Right Fit adds resources and information to help inform and inspire people during this critical point in time,\" said Linda Bohannon, MSM, BSN, RN, president of the Cancer Support Community. \nMaking up approximately 30 percent...