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HARMONY BIOSCIENCES SHOWCASES THE NEWEST PATIENTS AT THE HEART AND PROGRESS AT THE HEART AWARD RECIPIENTS
Awards catalyze community commitments to addressing the unmet needs of people with rare neurological diseases and sleep disorders PLYMOUTH MEETING, Pa., Oct.
About this update from Harmony Biosciences Holdings, Inc.
[{"type":"text","content":"Awards catalyze community commitments to addressing the unmet needs of people with rare neurological diseases and sleep disorders\n\n\nPLYMOUTH MEETING, Pa., Oct. 26, 2023 /PRNewswire/ -- Harmony Biosciences Holdings, Inc. (\"Harmony\") (Nasdaq: HRMY), a pharmaceutical company dedicated to developing and commercializing innovative therapies for patients with rare neurological diseases, has selected the latest round of nonprofit organizations for its Patients at the Heart and Progress at the Heart awards. These awards provide funding support to nonprofit organizations addressing the complex challenges affecting individuals with sleep disorders and rare neurological diseases through unique and impactful initiatives.\n\n \n \n \n \n \n \n\n \nOver the past four years, Patients at the Heart has supported 24 initiatives aimed at addressing the comprehensive needs of individuals and their families affected by sleep disorders and rare neurological diseases. The newest awardees include the following organizations:\nAwareness & Patient Support Progression – Kleine-Levin Syndrome FoundationThis initiative builds educational and support resources for people with Kleine-Levin syndrome (KLS) and the broader scientific community by creating a new ambassador program that connects patients, caregivers, educators, and professionals to enhance care. \n\"KLS is an exceptionally rare neurological disorder, affecting only one in a million individuals worldwide, primarily adolescents, and is characterized by episodes of excessive sleep, altered behavior, and a diminished understanding of the world,\" said Dani Farber, VP of the Kleine-Levin Syndrome Foundation. \"With support from a previous Patients at the Heart award, we achieved the 'Strategic Communications for Awareness' project, which fortified and expanded our patient registry and outreach endeavors. Building on this success, our 'KLS Awareness and Patient Support Progression' initiative will enhance resources for education, raise awareness, and establish a KLS ambassadorship program that will provide crucial support to patients, caregivers, educators, and professionals alike.\"\nPWS Sleep Within Reach Resources – Prader-Willi Syndrome Association | USAThis program educates health care professionals, caregivers of people with Prader-Willi syndrome (PWS), as well as residential and educational ...