Business
BridgeBio Launches MyAchonJourney, a New Resource for Families Navigating Achondroplasia
PALO ALTO, Calif., Aug. 19, 2024 (GLOBE NEWSWIRE) -- BridgeBio Pharma, Inc. (Nasdaq: BBIO) (BridgeBio), a commercial-stage biopharmaceutical company focused
About this update from Bridgebio Pharma, Inc.
[{"type":"text","content":"PALO ALTO, Calif., Aug. 19, 2024 (GLOBE NEWSWIRE) -- BridgeBio Pharma, Inc. (Nasdaq: BBIO) (BridgeBio), a commercial-stage biopharmaceutical company focused on genetic diseases, and QED Therapeutics, the BridgeBio affiliate focused on developing treatment options for skeletal dysplasias, today announced the launch of the initial phase of MyAchonJourney, a new online resource to support individuals and families living with achondroplasia. \"MyAchonJourney helps bridge the gap between medical care and daily life experiences,\" says William Mackenzie, M.D., Emeritus Chairman of the Department of Orthopedic Surgery at Nemours Children’s Health. “The goal of this comprehensive resource is not only to share knowledge about the medical impacts of living with achondroplasia, but to provide families with the tools they need to empower independence and assurance that their children can thrive, living full and happy lives.” The launch of MyAchonJourney marks the start of a multi-phase initiative designed to provide ongoing, evolving support tailored to the unique needs of families at every stage of their lives with achondroplasia. Developed in collaboration with members and leaders of the skeletal dysplasia community, MyAchonJourney intends to fulfill a significant need of providing education and awareness for families with achondroplasia. \"Our journey as individuals with achondroplasia is broad and colorful. The uniqueness of our community offers an invaluable perspective of the world and society, and would be lost if not for the commitment to share the benefits of diversity in lived experiences,” said Colleen Gioffreda, Little People of America Biotech Committee Member. “An initiative like MyAchonJourney is a helpful resource in raising awareness, empowering our community with knowledge, and ensuring that our voices continue to be valued, respected, and validated.\" In its initial phase, MyAchonJourney provides guidance on navigating medical topics, psychosocial issues, and quality-of-life adaptations through the first five years of a child's life, including: Pregnancy and Birth: Information on receiving a diagnosis before birth, planning for the baby’s arrival, and what to expect in the initial days at home.Infancy and Toddlerhood (Birth-2 Years): Information on potential medical issues, early developmental milestones, home and clothin...