Business
Avidity Biosciences Partners with the FSHD Society to Raise Awareness of Facioscapulohumeral Muscular Dystrophy on World FSHD Day
FSHD Society to host Avidity webinar on positive initial data from the Phase 1/2 FORTITUDE™ trial for people living with FSHD today at 1:00 p.m. ET SAN DIEGO,
About this update from Atrium Therapeutics, Inc.
[{"type":"text","content":"FSHD Society to host Avidity webinar on positive initial data from the Phase 1/2 FORTITUDE™ trial for people living with FSHD today at 1:00 p.m. ET\nSAN DIEGO, June 20, 2024 /PRNewswire/ -- Avidity Biosciences, Inc. (Nasdaq: RNA), a biopharmaceutical company committed to delivering a new class of RNA therapeutics called Antibody Oligonucleotide Conjugates (AOCs™), today announced it is partnering with the FSHD Society and joining the global community of patients, caregivers, and healthcare providers to raise awareness of facioscapulohumeral muscular dystrophy in support of World FSHD Day. The FSHD Society is hosting a webinar with Avidity today at 1:00 p.m. ET to share recent unprecedented del-brax data from its Phase 1/2 FORTITUDE™ trial in people living with FSHD, a rare, hereditary disorder marked by life-long, relentless loss of muscle function, significant pain, fatigue, and progressive disability.\n\n \n \n \n \n \n \n\n \n\"This World FSHD Day, we are excited to be joining the FSHD Society to share recent unprecedented data from our FORTITUDE study with the patient and caregiver community,\" said Sarah Boyce, president and chief executive officer at Avidity. \"We know the FSHD community is eagerly waiting for an approved therapy and we are committed to bringing forward a treatment as quickly as possible to the many families worldwide who are affected by FSHD. We are extremely thankful for the important contributions of patients, caregivers and families that continue to better inform our ongoing research and development as we advance del-brax for people living with FSHD.\"\n\"As the world's largest research-focused patient organization, we are dedicated to speeding the delivery of treatments and a cure for FSHD. With the remarkable data from Avidity's FORTITUDE study presented last week, we feel invigorated that there may be a potential treatment to change the course of this relentlessly progressive disease for people and families affected by FSHD,\" said Mark Stone, president and chief executive officer of FSHD Society. \"We remain deeply committed to our collaborations with industry leaders such as Avidity who are accelerating innovative research. World FSHD Day is an important opportunity to recognize the partnership, commitment and work that is necessary to bring more support and more hope to families impacted by FSHD ...