Press release
Anavex Life Sciences Announces Presentations at the IRSF Rett Syndrome Scientific Meeting
Presentations cover the Psychometric Evaluation of the Rett Syndrome Behaviour Questionnaire (RSBQ) and the Burden of Illness (BOI) Study in Rett Syndrome NEW
About this update from Anavex Life Sciences Corp.
[{"type":"text","content":"Presentations cover the Psychometric Evaluation of the Rett Syndrome Behaviour Questionnaire (RSBQ) and the Burden of Illness (BOI) Study in Rett Syndrome\nNEW YORK, April 27, 2022 (GLOBE NEWSWIRE) -- Anavex Life Sciences Corp. (“Anavex” or the “Company”) (Nasdaq: AVXL), a clinical-stage biopharmaceutical company developing differentiated therapeutics for the treatment of neurodegenerative and neurodevelopmental disorders including Alzheimer’s disease, Parkinson’s disease, Rett syndrome and other central nervous system (CNS) diseases, today announced presentations of Psychometric Evaluation of the Rett Syndrome Behaviour Questionnaire (RSBQ) and Burden of Illness (BOI) study in Rett syndrome by the respective working groups, at the IRSF Rett Syndrome Scientific Meeting, taking place in Nashville, TN, April 26–27, 2022. The presentation titled, “A Psychometric Evaluation of the Rett Syndrome Behaviour Questionnaire (RSBQ) in children and adults”, will be presented by Dr. Walter E Kaufmann, MD, Chief Scientific Officer of Anavex and is co-authored by Lindsay M. Oberman, Helen Leonard, Jenny Downs, Rina Cianfaglione, Michelle Stahlhut, Jane L. Larsen and Katherine V. Madden. The analyses presented support research and clinical use of the components of the RSBQ with better psychometric properties, in pediatric and adult populations. The authors propose a novel factor structure with strong empirical and analytical bases. The data highlight the need for additional evaluations and potential improvements of the RSBQ, considering its more widespread use. The presentation titled, “Burden of illness in Rett syndrome: initial evaluation of a disorder-specific caregiver survey” will be presented by the Chief Scientific Officer of Anavex, Dr. Walter E Kaufmann, MD and is co-authored with Alan K. Percy, Jeffrey L. Neul, Jenny Downs, Helen Leonard, Paige Nues, Girish D. Sharma, Theresa E. Bartolotta, Gill S. Townend, Leopold M.G. Curfs, Orietta Mariotti, Claude Buda, Heather M. O'Leary, Vanessa Vogel-Farley, Katherine V. Madden, Edward R. Hammond and Christopher U. Missling. Previous studies have shown decreased patient and caregiver quality of life (QoL); however, applied instruments have not adequately quantified disease burden on affected individuals and their families in Rett syndrome. Consequently, a global collaboration of stakeholders in...