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Alnylam Announces Recipients of Second Annual Advocacy for Impact Grants Program
− Program Recognizes Seven Patient Advocacy Groups Addressing Unmet Needs Among Three Rare Disease Communities − CAMBRIDGE, Mass.--(BUSINESS WIRE)-- Alnylam
About this update from Alnylam Pharmaceuticals, Inc.
[{"type":"text","content":"\n− Program Recognizes Seven Patient Advocacy Groups Addressing Unmet Needs Among Three Rare Disease Communities −\n\n CAMBRIDGE, Mass.--(BUSINESS WIRE)--\nAlnylam Pharmaceuticals, Inc. (Nasdaq: ALNY), the leading RNAi therapeutics company, announced today that seven patient advocacy groups will receive supportive funding as part of the company’s second annual Advocacy for Impact grants program. The global competitive grants program aims to inspire patient advocacy groups to develop solutions that address critical unmet needs among the hereditary transthyretin-mediated (hATTR) amyloidosis, acute hepatic porphyria (AHP) and primary hyperoxaluria type 1 (PH1) rare disease communities.\n\n\nIn its inaugural year, Advocacy for Impact recognized the efforts of seven patient advocacy groups around the world, providing grants totaling nearly $250,000.00 to fund new initiatives in support of hATTR amyloidosis and AHP. This year, seven patient advocacy groups in five countries across three continents will receive grants totaling $270,000.00. At their core, these initiatives are designed to increase disease awareness and access to diagnosis, offer education to patients, caregivers and healthcare providers, and improve patient care.\n\n\n“We are pleased to demonstrate our commitment to supporting patient communities through the Advocacy for Impact grants program for the second year in a row,” said Tiffany Patrick, Head of Global Patient Advocacy and Engagement at Alnylam. “Those impacted by rare diseases often face unique challenges due to the complexity of their conditions. Through Advocacy for Impact, we hope to inspire innovative thinking that brings high-impact initiatives to diverse communities and geographies, and ultimately, improves the lives of rare disease patients.”\n\n\n2019-2020 Advocacy for Impact grant recipients include:\n\n\n\nBalearic Association for Andrade Disease (Asociación Balear de la Enfermedad de Andrade [ABEA]), Spain – ABEA will develop a hATTR amyloidosis learning program using digital training capsules to raise awareness of the condition and provide education on disease management.\n\n\nAmerican Porphyria Foundation (APF), USA – The APF will develop an engaging educational tool utilizing the grand rounds format, “Porphyria Grand Rounds,” to educate healthcare professionals about AHP and shine a spotlight on th...