Business
Acadia Pharmaceuticals and StoryCorps Collaborate to Launch Yours, Truly – a Multicultural Storytelling Campaign to Bring Greater Awareness to Parkinson’s Disease Non-Motor Symptoms
- Yours, Truly Debuts During National Family Caregivers Awareness Month to Encourage the Parkinson’s Disease Community to Preserve and Share Stories and
About this update from Acadia Pharmaceuticals Inc.
[{"type":"text","content":"\n- Yours, Truly Debuts During National Family Caregivers Awareness Month to Encourage the Parkinson’s Disease Community to Preserve and Share Stories and Memories of Their Loved Ones\n\n SAN DIEGO--(BUSINESS WIRE)--\nAcadia Pharmaceuticals Inc. (Nasdaq: ACAD) today announced the national launch of Yours, Truly, a multicultural, storytelling campaign to bring greater awareness and understanding of the varied experiences of the non-motor symptoms associated with Parkinson’s disease. In collaboration with StoryCorps, the campaign provides the Parkinson’s disease community a unique forum to record, share and archive their personal stories, in both Spanish and English, while also seeking to reduce the stigma around non-motor symptoms by sharing personal experiences. Available at YoursTrulyPDP.com, the website features stories from the Parkinson’s disease community, as well as access to bilingual educational resources from advocacy organizations from across the U.S.\n\n“Parkinson’s disease affects about one million people in the United States, which may present with both motor and non-motor symptoms. Around half of the people living with Parkinson's disease may develop hallucinations or delusions over the course of their disease, but the majority of people don't proactively tell their physicians about these symptoms,”1-3 said Dr. Gus Alva, Assistant Professor at University of California, Riverside Medical School, Department of Neuroscience. “I am a bilingual (Spanish) physician who works with patients across cultures, and I believe that sharing personal stories about loved ones living with Parkinson’s disease may increase awareness of the symptoms while also helping reduce the stigma associated with the disease. As a result of hearing the experiences of others, patients and caregivers may be more inclined to ask for support and discuss potential treatment options.”\n\nIn a 2020 survey of StoryCorps participants, ninety-four percent felt comfortable sharing personal things about themselves, and more than half thought they would be more comfortable sharing with others in the future. Further highlighting storytelling’s impact to increase compassion, ninety-one percent of online survey respondents reported that listening to StoryCorps helped them better understand the experiences of people who are different from them.4\n\n“We are excited...